Welcome

I am a grandpa, who has a 5 year old little boy, brillant in mind, and c.p. on the right side.

My question,..would it be wise to have a shoe with a lift on it for his right leg to balance the gate, and the spine. Second, my daughter-in law wants to start tendon lenghtening. i, and my son, feel that this may be to early for such drastic measures to start. We feel that this procedure should start, when he is in his teen's , and has reached his averege weight. Your feedback, and comments are most valued.

I am so glad, that i have found this website, to help me understand the complications that involved with since birth.

Thank you, all for listening to this old war time man, and thank you to a man, named Nathan, who responed to my help, who is on your staff, thanks Nate.
I am leaving with you all my email address, for a direct answers. iIn closing, some of you may be wondering, why i don't talk to the doctors about some of these questions, well to this old timer, doctors, are wonderfull people, but medicine, is a business, your opinion, means more to me than there's, remember, we are in the trenches, they are not. thanks again for listening.

Sincerely, John L. Roberts
papajohnroberts@yahoo.com

Our little girl had her tendons lengthened when she was 5 years old. She is now 11 years old and walks & runs normally. I would definately do it again at 5 years old . I wouldn't have wanted her to miss the last six years not walking & growing correctly. God bless.

Derek was diagnosed with spastic quadraplegic cerebral palsy, moderate autism, and seizure clusters. I am not sure this will help, but it is just my experience. Our son is now six, and had the adductor tendon release and heel cord lengthening surgery done at 3. Prior to the surgery, he couldn't stand or crawl normally because his legs were too tight to straighten. After the recovery (8 weeks casted and 2 more months continuous therapy), he stood up by himself for the first time. He now walks with a walker, slow, but walking. I don't know how severe the spacisity is in your case, but Derek's was pulling his hips and ankle joints out of place. We were encouraged to continue with leg and hip braces, because he "couldn't get worse". But we wanted him better, not "not getting worse". If we had the choice again, we would do it again. No regrets. It's hard work following the surgery, but our results were worth it. Good luck!

My son has cp he was noticed at the age of 3 by my mother.She kept telling something is wrong he is falling to much i just figured it was because he was just not starting to walk.So finally got him checked and they{the doctors}said he has cp. So here i am a single mother not knowing anything about cp.So i did my homework and now i know everything there is to know.I just had a question about lenghting he get botox 6 shots in eack leg and i dont think it is doing any good.I think this would b a good thing for him because he walks on his toes and balance is off i just need some kind of advice please help

Hi, I am a grandmother,who has a 6yr old granddaughter w/mild CP. She was a tippy toe walker as well. We started w/ PT, then went in for Botox shots(which did nothing for her) After much discussion w/her orthopedic doctor we decided on the lengthing surgery last year(she was 5 1/2) . The results were amazing! She walks completely flat footed,she falls less, has better balance & can even run. Every situation is different,but if the Dr says it ok, then I would go for it. The recovery was pretty quick. She missed almost a month of school,but that was because of wheel chair issues & staffing(private school)